How to Provide Respite Care for Families of Down Syndrome
Families of those with Down syndrome face challenges when it comes to caring for them. At times, all families caring for loved ones need a break. Respite care offers a solution to families. Depending on the age and physical limitations of the patient, respite care may be in the form of camps or in-home supervision and care.
- Find camps dedicated to those with Down syndrome. You can search the Internet or your local yellow pages.
- Watch for local and state condition specific events. Sign up and pay if needed. If you find there aren't any support groups or events that cater to Down syndrome patients, consider hosting your own event to raise awareness and form bonds with other families facing the same issues. Most national non profit organizations have branches located at the state level and becoming a member is beneficial. Consider forming a committee in your area, where parents of Down syndrome children take turns relieving each other. Perform due process duties and background check volunteers. The purpose of respite care is to ensure the safety of patients during rest periods needed by other family members.
- Contact agencies that service mentally challenged adults and children. Submit the required information, which is usually an evaluation or documentation of the challenges. Free services exist, but you can find reduced or paid care, as well. Contact your physician or insurance company for a list of respite care providers if needed.
- Consider starting your own care services where there is not the necessary resources. You can offer services to families that may not have a family member with Down syndrome, but a condition that requires respite care.